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When this really hits, it's really going to hit hard.
Thanks guys!
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This was never going to hit lightly.
Keep your guard up and do what's right.
Me, as well as lots of others are right here for you man.
We can't take this away but we can help you cope with it.
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I feel good about cancelling the gig...
I can WFH until she's better (fingers crossed).
Doctor tomorrow...
Move is next week...
I think I'd be less stressed if it weren't for everything else going on - short notice wedding (all done but that was a lot of work), organising our last holiday abroad, this house move, work etc. Better get to bed now so I can get up early - cheers!
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Tomorrow marks a year since my g/f's mum passed away. Both my g/f and her brother took time off work, I took some days off and spent all my free time driving relatives to/from hospital and supporting... in this case the diagnosis to passing away was only 2 weeks but that wasn't known - projection was initially longer (potentially months), and was recalculated shorter but she deteriorated faster still... this wasn't cancer so isn't comparable from a medical standpoint, but the point is you can make money another time, but you can only spend time together now. By all means WFH and see what's happening, but don't fight your gut instinct on taking leave when that seems right
"You can make money another time but you can only spend time together NOW."
Please Tommy.
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Tom - you are stoic beyond belief but - please forgive me for saying this - time is finite. When the end came for my sister, it was very sudden. Could I have spent more time with her? I'm afraid the answer is unequivocally 'yes'.
We all have your best interests at heart - the consensus seems to be that now's the time to make time. Best of luck with whatever you decide....
She's just back from doctor... she might have a tumour in her chest/shoulder area so she's getting a CT scan within the next 3 weeks. The scan, I think, is just for the chest and shoulder area (!?) and if it shows tumour growth they say that radiotherapy will be recommended.
Doctor said she likely has a bad viral infection (with liver spread her sweats make sense, but her shivering indicates an infection) which should pass. She's going to stop the painkillers she's on and start taking small amounts of morphine for the pain.
When he was prodding her she was wincing with pain - clearly her body hurting from the spread.
Doctor specifically said not to take time off work (don't shoot the messenger!!) at this moment. The CT scan will be another point at which to re-evaluate. In the meantime I can be flexible with working from home.
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Well done to them.
If you can work from home until the CT scan then you're at least there with her albeit not completely "Off Work" but at least you're not disappering each day.
Well done man.
You are quite an inspiring fella you know. You've just put a lot of things into perspective mate.
Thoughts are with you all. And of course, anytime you need mate, get in touch. J
3:47am-
Bugger all sleep last night.
Tonight got to bed midnight. Woke up 1am, Sheena said pain in liver, chest, shoulders and back - 9/10. Took 1ml morphine in mouth. Rung 111 as no effect. Told to take another 1.5ml. No effect. Now I'm A&E at 3.40am so she can get a morphine muscular injection (just had it now in her arm). Marie curie was rung but they wanted to do syringe driver (in bed hooked up to the stuff!!) - no thanks. We still have to meet a district nurse... Palliative care nurse provides no care like this and NHS 111 seems hit and miss and takes TIME. Bit of a medical no man's land. Will try district nurse tomorrow.... The night is young yet...
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